La transición posquirúrgica en adolescentes que padecen escoliosis idiopática. Un estudio cualitativo / The post-surgical transition in adolescents who have idiopathic scoliosis. A qualitative study

Objetivo: Conocer el proceso que viven las y los adolescentes que padecen escoliosis idiopática al intervenirse quirúrgicamente para corregir la deformidad física. Método: Estudio cualitativo con enfoque interaccionismo simbólico. Se realizaron 22 entrevistas semiestructuradas a adolescentes intervenidos de fusión espinal posterior en un hospital de tercer nivel de Madrid entre mayo de 2019 y enero de 2021. Se llevó a cabo análisis en progreso de Taylor y Bogdan. Resultados: Los pacientes con escoliosis idiopática del adolescente presentan una transición compleja simultánea de tipo salud/enfermedad y de desarrollo. Las principales condiciones inhibidoras de la transición son los significados sobre: su identidad, sociales, creencias sobre la cirugía, el desconocimiento sobre la patología, el proceso quirúrgico y su recuperación. Como condiciones facilitadoras encontramos: la actitud positiva hacia el cambio físico, estético, social, el nivel socioeconómico y el apoyo familiar. Conclusiones: Los informantes de este estudio refieren que la afectación estética y las limitaciones físicas son los principales elementos que les causan disconfort. La intervención quirúrgica se presenta como la solución a esta situación. La recuperación es un punto crítico en el proceso de transición debido principalmente al dolor. Aceptan el malestar sufrido durante la recuperación porque esperan obtener una mejora en la imagen y las limitaciones físicas. Los cambios y diferencias que experimentan durante la transición les hace pensar que van a poder llevar una «vida normal» a la que se refieren constantemente en los discursos.(AU)

Objective: To know the process experienced by adolescents suffering from idiopathic scoliosis when undergoing surgery to correct the physical deformity. Method: Qualitative study with a symbolic interactionism approach. 22 semi-structured interviews were conducted with adolescents who underwent posterior spinal fusion in a third-level hospital in Madrid between May 2019 and January 2021. Taylor and Bogdan's analysis in progress was carried out. Results: Patients with adolescent idiopathic scoliosis present with a complex simultaneous health/illness and developmental transition. The main inhibitory conditions of the transition are the meanings about: their identity, social, beliefs about surgery, ignorance about the pathology, the surgical process, and their recovery. As facilitating conditions, we find: a positive attitude towards physical, aesthetic, and social change, socioeconomic level, and family support. Conclusions: The informants of this study refer that aesthetic affectation and physical limitations are the main elements that cause them discomfort. Surgical intervention is presented as the solution to this situation. Recovery is a critical point in the transition process mainly due to pain. They accept the discomfort suffered during the recovery because they hope to obtain an improvement in the image and physical limitations. The changes and differences they experience during the transition make them think that they will be able to lead a «normal life» to which they constantly refer in their speeches.(AU)

Dedicated spine nurses and scrub technicians improve intraoperative efficiency of surgery for adolescent idiopathic scoliosis.

STUDY DESIGN: Retrospective comparative study. OBJECTIVE: To determine how the use of dedicated spine surgical nurses and scrub technicians impacted surgical outcomes of posterior spinal fusions for adolescent idiopathic scoliosis (AIS). Dedicated team approaches to surgery have been shown to improve surgical outcomes. However, their study on orthopaedics and spine surgery is limited. METHODS: A retrospective review of all patients who underwent a primary posterior spinal fusion of seven or more levels for AIS at a tertiary care pediatric hospital with a minimum of 2 years of follow-up from 2006 to 2013 was conducted. Our institution had dedicated spine surgeons and anesthesiologists throughout the study period, but use of dedicated spine nurses and scrub technicians was variable. The relationship between the proportion of nurses and scrub technicians that were dedicated spine and surgical outcome variables was examined. A multiple regression was performed to control for the surgeon performing the case and the start time. RESULTS: A total of 146 patients met criteria. When teams were composed of < 60% dedicated spine nurses and scrub technicians, there was 34 min more total OR time (p = .008), 27 min more surgical time (p = .037), 7 min more nonsurgical OR time (p = .030), 30% more estimated blood loss (EBL) (p = .013), 27% more EBL per level instrumented (p = .020), 113% more allogeneic transfusion (p = .006), and 104% more allogeneic transfusion per level instrumented (p = .009). There was no significant difference in length of stay, unplanned staged procedures, surgical site infection, reoperation, or major medical complications. CONCLUSIONS: Performing posterior spinal fusions for AIS patients with dedicated spine nurses and scrub technicians is associated with a significant decrease in total OR time, blood loss, and transfusion rates. LEVEL OF EVIDENCE: III.

Characterizing Anesthetic Management and Perioperative Outcomes Associated with a Novel, Fusionless Scoliosis Surgery in Adolescents.

Anterior vertebral tethering (AVT) is a novel "fusionless" surgical approach to correct scoliosis. This study aims to characterize the anesthetic management and perioperative outcomes of AVT and traditional posterior spinal fusion (PSF) after establishing the technique at our institution. Scoliosis correction procedures performed in patients aged 10 to 21 years between January 2014 and August 2017 were identified in the electronic medical record. Patient characteristics and perioperative data about anesthetic use and pain management were extracted. Descriptive statistics were generated. Thirty-five patients undergoing AVT and 40 patients undergoing PSF met inclusion criteria. Preoperative fluoroscopy-guided epidural placement was used only in the AVT group (86%). The worst pain score on postoperative day (POD) 1 after AVT was a mean (SD) of 5.6 (2.3), with average pain scores on subsequent days ranging from 2.9 (1.2) to 3.6 (1.7). Total in-hospital opioid consumption in morphine milligram equivalents was 70 (76.6) for AVT and 193.4 (137.2) for PSF (P < .01). Discharge occurred on POD 4.4 (1.4) for AVT and POD 6.2 (1.9) for PSF (P < .01). The worst pain score on POD 1 for PSF was 6.6 (2.1), and average pain scores ranged from 3.7 (1.8) to 4.2 (1.8). These results help inform about the expected recovery profile and narcotic requirement after AVT and PSF.

Prevention of Medical Trauma in Children With Early Onset Scoliosis and the Use of Mehta Casting.

Despite recent emergence of information about treatment of medical trauma in children, the literature remains sparse regarding prevention of medical trauma. Health-care professionals are in an ideal position to educate about and advocate for ways to prevent the far-reaching consequences of medical trauma, yet policies remain which at times contribute to the problem. This article presents practical approaches intended to reduce the likelihood of medical trauma in children receiving serial casting for treatment of progressive infantile scoliosis (PIS). The majority of the suggestions apply not only to children being treated for PIS, but to children receiving medical treatment for many conditions. The article also provides suggestions for parents who are enduring the stress of their child undergoing repeated surgeries and hospital stays. The authors interviewed a variety of experts in the field and draw on their own experiences as clinical social workers specializing in the treatment of post-traumatic stress disorder and developmental trauma in children.

Mothers' experience of caring for a child with early onset scoliosis: A qualitative descriptive study.

AIMS AND OBJECTIVES: This study aimed to identify and describe the experience of parents of children diagnosed with early onset scoliosis living in Australia. BACKGROUND: Chronic childhood disease has a major impact on health-related quality of life. Caring for a child with a chronic illness is well documented but the specific experiences of parents who care for children with early onset scoliosis, a rare but devastating illness, has not been explored. Numerous studies have described the interrelated psychological, financial, social, physical and logistical factors that impact the experience of the caregiver role with various diseases, but in the case of early onset scoliosis, limited studies have been conducted about the parental experience. METHODS: A qualitative descriptive design was used. A snowball sampling technique assisted in the recruitment. Parents invited to the study included mothers, fathers and guardians. Data were collected through semistructured interviews and transcribed verbatim. Transcripts were analysed thematically. Data collection complied with the Consolidated criteria for reporting qualitative research guidelines. FINDINGS: Twelve mothers of children with early onset scoliosis were interviewed, as only mothers consented to participate. Four major themes emerged: emotional rollercoaster ride, a lack of resources, money talks and pervasive burden. Factors that impacted on the participants' ability to confront, manage and endure caring for a child with early onset scoliosis emerged from the data. CONCLUSION: The findings suggest there are multiple factors that influence the experience of mothers' caring for a child with early onset scoliosis. The recognition and appropriate management of these factors by healthcare professionals have the potential to improve the quality of life of parents who care for a child with early onset scoliosis. RELEVANCE TO CLINICAL PRACTICE: Healthcare professionals have first-line contact with parents of children with early onset scoliosis and are well placed to provide parents with evidence-based education and increased support.

Vivencias de las jóvenes diagnosticadas de escoliosis idiopática / Experiences of young diagnosed with idiopathic scoliosis

Justificación: Durante la adolescencia y la juventud acontecen cambios psicológicos y fisiológicos que forman parte del desarrollo normal de la persona. La irrupción de la escoliosis en esta edad influye en la vivencia de la autopercepción corporal. Objetivo: Conocer cómo una deformidad corporal influye en la estabilidad emocional de las jóvenes diagnosticadas de escoliosis. Diseño: Metodología cualitativa fenomenológicas situada en la hermenéutica. Método: Se utilizó una entrevista semiestructurada y dirigida a mujeres jóvenes con escoliosis idiopática ingresadas en la unidad de raquis del Hospital Vall d´Hebron en Barcelona. Resultados: Los principales resultados señalan un compromiso emocional que afecta a las actividades de la vida diaria de las jóvenes, manifestándose, en algunas ocasiones, con sentimientos de vergüenza, tristeza, preocupación, miedo, amargura, complejo y rabia. La experiencia se vive como un duelo ante la pérdida de expectativas futuras. Conclusiones: Los sentimientos y las emociones vividas y referidas por estas pacientes comprometen su estabilidad emocional (AU)

Justification: During adolescence and youth psychological and physiological changes occur that are part of the normal development of the individual. The emergence of scoliosis in this age influences the perception of body experience. Background: Knowing how a bodily deformity affects the emotional stability of young people diagnosed with scoliosis. Design: Qualitative research with phenomenological methodology at the hermeneutics. Method: A semi-structured interview was used and aimed at young women with idiopathic scoliosis entered in the spine unit at the Hospital Vall d'Hebron in Barcelona. Results: The main results indicate an emotional commitment that affects the activities of daily life for young people, demonstrating, sometimes with feelings of shame, sadness, worry, fear, bitterness, and rage complex. The experience is lived as a duel to the loss of future expectations. Conclusions: Feelings and emotions experienced and reported by these patients commit their emotional stability (AU)

Guided Imagery for Adolescent Post-spinal Fusion Pain Management: A Pilot Study.

Orthopedic surgery for adolescent idiopathic scoliosis entails anxiety and severe postoperative pain. The aim of this pilot study was to investigate an intervention for adolescent post-spinal fusion pain management in patients from a tertiary care hospital in Montreal, Canada. Participants were adolescents and young adults ages 11 to 20 years undergoing spinal fusion. Participants were randomized to standard care or standard care with adjunct intervention. The intervention consisted of a DVD with information and guided imagery/relaxation exercises to practice at least three times a week at home. A nurse screened the DVD with the patient preoperatively and at discharge (T1) and telephoned 2 weeks post-discharge (T2) to reinforce the technique. Both groups completed questionnaires at T1, T2, and T3 (1-month postoperative follow-up). Outcome measures included pain intensity, anxiety, coping mechanisms, and daily activities. From March 2010 to June 2011, we enrolled 40 of 45 eligible participants (n = 20 per group), average age 15 ± 2.1 years, 7 participants were male. Compared with the control group, the experimental group experienced significantly less overall pain at all time points, with moderate to large effect sizes at T2, T3 (p ≤ .007). Worst pain in 24 hours was moderately decreased at T2 (p = .01). State-trait anxiety remained high. On a 10-point scale, a median 2.5-point benefit was seen in eating and sleeping (Mann-Whitney test, p = .002), and 2 points in walking (Mann-Whitney test, p = .003). Coping strategies showed no significant differences. Addition of a guided imagery and relaxation exercise DVD for home use was more effective than standard care alone for postoperative pain. Our nonpharmacologic adjunct looks promising. Larger sample size and longer (6-9 months) follow-up will permit refinement.

Does school scoliosis screening make the grade?

School nurses have provided routine health screenings of school-age children for decades. During the 1970s, recommendations for school scoliosis screening, which were based upon poor access to health care, led state boards of education to mandate that school nurses screen for scoliosis. The history of mandated scoliosis screening in U.S. schools is reviewed, and current school nurse practices for scoliosis screening are presented. Elevated referral rates for repeat scoliosis examination following school scoliosis screenings have led to questions of efficacy. Further controversy exists regarding school nurses screening for scoliosis due to a lack of evidence indicating a decreased need for scoliosis surgery. This article contains evidence-based recommendations for discontinuing school scoliosis screening to help school nurses refocus their efforts on complex health needs and preventive health issues more likely to impact the majority of their students.

Raising awareness of scoliosis among children's nurses.

Scoliosis affects up to 3% of adolescents, some babies and young children, and many children with existing neuromuscular and syndromic conditions. It is the most common spinal deformity. Not all children with scoliosis require active intervention, but for more significant, progressive curves, bracing and/or surgery may be required. Bracing studies have historically been of low methodological quality, but a recent randomised controlled trial ( Weinstein et al 2013 ) has shown the efficacy of bracing in decreasing curve progression, thus reducing the necessity of surgery for some patients. Modern surgical techniques are effective in correcting scoliosis, but the surgery is major, with significant risks. Early identification of scoliosis is vital to maximise effective treatment, support the child and family, and optimise holistic health.

Adolescents' experience with scoliosis surgery: a qualitative study.

This article reports a study of adolescents' narrated experiences of undergoing scoliosis surgery. Six adolescents were interviewed. Open and semistructured questions were asked, and a qualitative content analysis of the text was performed. The results are presented in three main categories followed by subcategories. The three main categories of experience were emotional, physical, and social. The emotional aspects that emerged were fear, nightmares, nervousness, and helplessness. These had a great impact on adolescents' well-being before, during, and after the hospital visit. The physical aspects were mobilization, scars, different hip levels, pain, nausea, appetite, and urinary catheter. These aspects caused much discomfort, mostly during the hospital visit. The social aspects were friends, power, coaching and comfort, and sports. Some of the social aspects had a strong negative impact on the adolescents' well-being mostly after the hospital visit. This study suggests that both before and long after the surgery adolescents have strong emotions that they should be better prepared and helped to manage. To optimize perioperative care an interdisciplinary, a holistic approach must be taken that incorporates the complexity and whole of the adolescent's experiences. The findings of this study suggest that perioperative care of adolescents during scoliosis surgery needs to be optimized. To improve patients' psychologic preparation before surgery pediatric nurses should learn more about the individual patient and make care plans from a holistic perspective. Follow-up after discharge should address emotional, social, and physical aspects of the adolescent's health.

Examination of the newborn with congenital scoliosis: focus on the physical.

Although scoliosis at birth is rare, conditions at birth and in the newborn period predispose newborns to the development of scoliosis in later life. Scoliosis is congenital when associated with abnormal vertebral segmentation regardless of the age of diagnosis. Other conditions may predispose neonates to vertebral damage or the development of sustained uneven forces on the developing spine. Although it is difficult to know which newborns will progress to developing scoliosis, it is important to be aware of risk factors to provide anticipatory education for parents and to arrange appropriate follow-up after discharge. This article reviews the embryology of vertebral formation and risk factors for the development of scoliosis. The discussion includes the incidence, risk factors, genetics, associated problems, physical examination, and nursing implications of the infant with congenital scoliosis.

Parents' self-identified stressors and coping strategies during adolescents' spinal surgery experiences.

Spinal fusion surgery for idiopathic scoliosis during adolescence is a tremendous stressor for parents. This study investigated parents' pre- and postoperative stressors and their coping strategies. Ninety-two parents identified their predominant stressor and completed the Ways of Coping Questionnaire during their adolescent's preoperative clinic visit and 77 completed this procedure 4 days postoperatively. Results showed that primary stressors were parental role loss (28.26%), possibility of poor surgical outcomes (28.26%), and uncertainty about successful recovery (27.17%) preoperatively, and concerns about pain (32.47%) and parental role loss (32.47%) postoperatively. The greatest increase from pre- to postoperative periods occurred in concerns about pain. Parents used both emotion-focused and problem-focused coping strategies with significant increases postoperatively in confrontive coping, planful problem solving, and positive reappraisal and significant decreases in self-control and seeking social support. Providers should target interventions to alleviate stress and bolster coping for parents.

Post-surgical telehealth support for children and family care-givers.

Early discharge of children following surgery shifts the burden of care from professionals in hospital to family care-givers at home. We evaluated the relative effectiveness of telephone and videophone follow-up for children and families after a child's scoliosis surgery. Fourty-three patients and their families were enrolled in the study with 21 dyads receiving videophone and 22 dyads telephone support. At discharge, those in the intervention arm were provided with a videophone operating on the ordinary telephone network (PSTN). Data were gathered during telehealth contact on post-discharge day 3 and during extra calls with the clinic nurse, and during sessions with a research assistant comprising a follow-up call and an interview at the six-week post-surgical visit. Calls and interviews were recorded and transcribed. Data were analysed using constant comparative analysis. The results showed that videophone and telephone use provided care continuity for patients and their families following a child's back surgery. The relative effect of the videophone and telephone technology depended on the fit between the characteristics of the patients and families and the capacities of the technology. When implementing telehealth for follow-up care, a participatory process is recommended to ensure a fit between user characteristics and technology.

Preparation of children for spinal surgery: an exploratory study.

AIM: The United Kingdom (UK) Scoliosis Association (2001) estimate that three in every 1,000 adolescents with scoliosis require hospital treatment amounting to at least 1,000 patients per year undergoing surgery. This exploratory study identified qualified nurses' feelings towards preparing children and young people and their families for spinal surgery. METHOD: In-depth interviews, observation of practice and a questionnaire survey were carried out with nine qualified nurses. Themes were then developed to inform the development of a questionnaire constructed of statements requiring Likert style responses. The questionnaire was distributed to 30 qualified nurses from hospital and community settings who cared for children and young people requiring spinal surgery. Responses were received from 23 nurses and these were analysed using descriptive statistics. The findings reported here relate to this survey questionnaire. RESULTS: The findings highlighted the importance and influence of communication skills but opinions differed regarding the effect that poor communication could have on the surgical care of these children. There was no consensus about which tools were deemed most suitable for use in preparing children for spinal surgery. Conflicting information was seen as detrimental. Training and education for professionals were viewed as important and positive measures that may need improvement. CONCLUSIONS: Nurses working with children, young people and their families are aware that they have a vital role to play in the preparation of children and young people for spinal surgery in both hospital and community settings. This small study suggested the need for: improved multi-disciplinary education on the subject of spinal surgery; development of a national care pathway to underpin consistent care and audit; and more specific information resources for children, young people and families.

[An experience of taking care of an adolescent spinal surgery patient suffering from scoliosis].

This case report describes the experience of taking care of an adolescent (nineteen year-old) girl, who needed spinal surgical treatment because of scoliosis. The author assessed the patient's condition by observation, interview, and the Gordon 11-item functional health pattern assessment guide. Because she had had no previous surgical experience, and faced changes in her bodily appearance, the adolescent had physical and psychological problems, such as acute pain, self-care deficit, anxiety, and body image disturbance. Besides applying professional knowledge and technical ability, to alleviate the discomfort caused by the young lady's surgery, the author used caring, listening and empathy to encourage and support her in learning self-care, to accept her change in body image, and to overcome the impact of the disease. Through this nursing process, the author came to understand that nurses must concern themselves with both physical problems and mental needs in order to provide holistic health care.

Creating a halo traction wheelchair resource manual: using the EBP approach.

This article describes a clinically based project that used evidence-based practice (EBP). It follows the EBP process of: (1) identifying a clinical problem and stating a clinical question that focuses the process; (2) doing a literature search for best research evidence; (3) using query techniques, such as phone calls and e-mails, to determine best clinical practice among similar institutions; and (4) drawing a practice conclusion-to accept the status quo, to instigate change of practice, or to do more research. This project was an interdisciplinary effort orchestrated by the surgical programs nurses at Boston Children's Hospital.

Perception of the social support for adolescents who undergo corrective back surgery for scoliosis.

The objective of this study is to compare the perception of social support upon admission and 6 weeks postoperation of adolescents aged 13 to 19 years (M = 14.7 years), who underwent corrective back surgery for scoliosis. Twenty-two French-speaking participants were found from three different hospital centers located in two large cities in the Quebec province. Data were collected using the French version of Interpersonal Relationships Inventory (IPRI). No significant difference was observed between the results obtained on admission and those obtained 6 weeks later for the global measures of social support available. Nevertheless, analysis of data at the two time points showed a significant difference with regard to intimacy of adolescents. Adolescents reported feeling more invaded in the postoperative period (6 weeks after the surgery) than on admission at the hospital. These results serve to point out the nursing care involvement as well as the surgical techniques and ambulatory care that reduce hospitalization time. The results raise questions about the nurse's role in the adequate support for adolescents as well as the impact of reduced length of hospitalization.

Perceptions of body image, happiness and satisfaction in adolescents wearing a Boston brace for scoliosis treatment.

AIMS: To explore the impact of bracing on the perceptions of body image, happiness and satisfaction of adolescents with scoliosis. DESIGN: The study was designed as compare of 134 girls and 16 boys who wore a Boston type brace for scoliosis treatment and a control group of 99 healthy girls and 51 healthy boys. All them were secondary school pupils living in Athens Greece and were interviewed. A semi-structured schedule included general questions, and the Piers-Harris scale was used. Data were analysed using the SPSS/PC+ software, and descriptive statistics, factor analysis and the non-parametric Mann-Whitney U-test. Statistical significance was set at P=0.05 or less. RESULTS: The scoliosis group had a poorer perception of body image in comparison to the control group (P=0.048), while boys with scoliosis (P=0.030) had a better perception of body image than girls with scoliosis. Girls with scoliosis had a statistically significant difference (P=0.0388) in perception of happiness and satisfaction, in comparison with girls in the control group. Cohabitation with the mother seemed to be negatively correlated with body image, happiness and satisfaction perceptions because adolescents with scoliosis who were not living with their mother had a better body image perception (P=0.027) as well as better perceptions of happiness and satisfaction (P=0.047). Nevertheless, only 5% of those with scoliosis declared that they had opportunities to discuss their feelings and problems with health professionals, while 90% of them declared that they wanted to have more opportunities to do this. CONCLUSION: Adolescents with scoliosis face problems during bracing and they need to be supported by health care professionals.